The 20 Best RASopathies Doctors Near Me in Chapel Hill, NC

Find the Top RASopathies Experts and Specialists

The 20 Best RASopathies Doctors near Chapel Hill, NC

Last Updated: 02/22/2026

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MediFind found 26 doctor with experience in RASopathies near Chapel Hill, NC. Of these, 25 are Experienced and 1 are Advanced.

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26 providers found
    Advanced in RASopathies
    Advanced in RASopathies

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
     (0.6 miles away)
    Languages Spoken:
    English

    Robert Greenwood is a Pediatrics provider in Chapel Hill, North Carolina. Dr. Greenwood is rated as an Advanced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), RASopathies, and Legius Syndrome.

    Experienced in RASopathies
    General Surgery | Plastic Surgery
    Experienced in RASopathies
    General Surgery | Plastic Surgery

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
     (0.6 miles away)
    Languages Spoken:
    English

    Jennifer Carr is a Plastic Surgeon in Chapel Hill, North Carolina. Dr. Carr is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Neurofibromatosis, Legius Syndrome, Juvenile Polyposis Syndrome, RASopathies, and Mastectomy.

    Racheal Tushabe
    Experienced in RASopathies
    Internal Medicine
    Experienced in RASopathies
    Internal Medicine

    Duke Primary Care Sage Road Internal Medicine

    201 Sage Rd, 
    Chapel Hill, NC 
     (3.4 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English
    Offers Telehealth

    I treat adult patients with a broad range of clinical ailments and obesity. I particularly enjoy disease prevention and geriatrics. My approach to care is holistic, respectful, patient-centered, and guided by science. I strongly believe in the prevention of disease whenever possible. I enjoy seeing patients, getting to know them well, and helping them to achieve their desired goals. Dr. Tushabe is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Endocarditis, Renovascular Hypertension, Atherosclerosis, and Coronary Heart Disease.

    Are you looking for a specific type of RASopathies?

    Common conditions include: Cardiofaciocutaneous Syndrome, Cardiomyopathic Lentiginosis, Costello Syndrome, Legius Syndrome, Noonan Syndrome

    Learn about our expert tiers
    Dmitriy M. Niyazov
    Experienced in RASopathies
    Medical Genetics
    Experienced in RASopathies
    Medical Genetics

    Duke Health Integrated Practice Inc

    40 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    25+ years
    Languages Spoken:
    English, Russian
    Offers Telehealth

    I see patients with mitochondrial and lysosomal storage diseases, developmental delay, intellectual disability, chromosomal disorders, congenital defects, short stature, failure to thrive, and adult genetic disorders. I love the application of rapidly growing genetic knowledge to treat patients with a variety of medical problems that involve a complex interaction of genetic and environmental factors, particularly since the Human Genome Project. I find it fascinating to use the massive power of sequencing technology and artificial intelligence/machine learning to predict phenotypes from genotypes with increasing clinical relevance to human health. In my spare time, I like to hike and play sports with my wife and teenage sons, play piano, and learn famous Russian poetry of the 19th century. I see patients in person and through telehealth. Dr. Niyazov is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Early Infantile Epileptic Encephalopathy, Macroglossia, Ehlers-Danlos Syndrome (EDS), and Microcephaly.

    Ali R. Zomorodi
    Experienced in RASopathies
    Neurosurgery
    Experienced in RASopathies
    Neurosurgery

    Duke Neurological Disorders Clinic - Clinic 1L

    40 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English, Farsi
    Offers Telehealth

    I specialize in skull base tumors, certain vascular tumors that affect the brain, brain aneurysms, and strokes. Skull base tumors usually occur in a hard-to-reach area where there are a lot of sensitive structures. I have devoted many hours to perfecting my technical skills and my surgical approaches. Skull base tumors tend not to be malignant, so if you can remove the tumor cleanly, you can cure the patient. It's thrilling to be able to reassure the patient and family that they don't have to worry about this disease anymore. Having these conditions can be a scary time in patients’ lives, and I have committed myself to helping them through the process. It's also important to be able to perform surgery in a setting where the patient has the best likelihood of a good outcome. That's what makes Duke stand out: We do rare things frequently and, as a result, we're quite good at them. Dr. Zomorodi is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Aneurysm, Acoustic Neuroma, Schwannoma, Endovascular Embolization, and Cerebral Artery Bypass Surgery.

    Brett Rocos
    Experienced in RASopathies
    Orthopedics | General Surgery
    Experienced in RASopathies
    Orthopedics | General Surgery

    Duke Spine Center - Clinic 1B/1C

    40 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    9+ years
    Languages Spoken:
    English
    Offers Telehealth

    I specialize in the treatment of complex sacral, lumbar, thoracic, and cervical spinal disorders in adults using less invasive and open techniques. I have a special interest in the treatment of spinal deformity affecting the cervical or thoracolumbar spine and managing spinal trauma. I aim to care for patients through close collaboration, taking my time to ensure that everyone understands their particular condition and helping each individual make the treatment decision that is right for them and their particular circumstances. Every patient is a person with their own needs and wants, and so I treat each as I would like to be treated at every stage. My team and I are here to help patients with concerns and questions before, during, and after treatment. Dr. Rocos is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Scoliosis, Kyphosis, Spondylolisthesis, Osteotomy, and Spinal Fusion.

    Brian E. Brigman
    Experienced in RASopathies
    Surgical Oncology
    Experienced in RASopathies
    Surgical Oncology

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English

    As an orthopaedic oncologist, I am passionate about providing the best diagnostic and therapeutic surgical care for patients with benign or malignant bone or soft tissue tumors of the musculoskeletal system. As the director of the Sarcoma program at the Duke Cancer Institute, my passion is building our team to provide the best clinical care and basic scientific, translational and clinical research to serve our patients. Dr. Brigman is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Adult Soft Tissue Sarcoma, Bone Tumor, Chondrosarcoma, Bone Graft, and Hip Replacement.

    Gerald A. Grant
    Experienced in RASopathies
    Neurosurgery | Pediatrics
    Experienced in RASopathies
    Neurosurgery | Pediatrics

    Duke Cancer Center Brain Tumor Clinic

    20 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a neurosurgeon and care for children and young adults. I focus on minimally invasive approaches to improve the quality of life of my patients. Your patient experience is very important to me, and I will strive to provide the best possible care for you and your family. I will always go the extra mile to try to improve your care. I care for conditions that affect the brain and spine, including tumors, epilepsy, Chiari malformations, hydrocephalus, craniosynostosis, vascular conditions such as AVMs and Moya Moya disease, and complex tethered cords. I learn so much from my patients and really look forward to getting to know all of them. I strive to bring the best collaborative team to the table to achieve the best possible outcome. I am delighted to provide the most innovative, holistic, and compassionate neurosurgical care at Duke Health. I am also a professor and Chair of the Department of Neurosurgery. Dr. Grant is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Chiari Malformation Type 2, Medulloblastoma, Syringomyelia, Posterior Fossa Decompression, and Osteotomy.

    John P. Kirkpatrick
    Experienced in RASopathies
    Radiation Oncology
    Experienced in RASopathies
    Radiation Oncology

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    27+ years
    Languages Spoken:
    English
    Offers Telehealth

    I'm a radiation oncologist, and I specialize in treating brain, base of skull and spine tumors, as well as tumors that arise in the body but go to the brain or the spine, as in certain cases of lung, breast and kidney cancer and melanoma. When I meet with a patient, it’s important for me to introduce them and their family to our team of doctors, therapists, nurses and treatment planners. The patient and their family will also become members of this team – truly the most important part - so we can work together to tailor care based on their wants and needs. At Duke, we’ve developed techniques to precisely and accurately treat small, complex lesions and tumors. We can minimize the amount of radiation that goes into normal tissues and at the same time maximize the amount of radiation where it is needed. Our team is geared to delivering every treatment to each patient exactly as planned, especially in complicated and difficult situations. As a patient or a physician, I think there’s no better place to be than Duke. I love my work, feel honored that my patients place their trust in our team and me and work hard to earn that trust. Dr. Kirkpatrick is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Brain Tumor, Meningioma, Glioma, Astrocytoma, and Gamma Knife Radiosurgery.

    Allan H. Friedman
    Experienced in RASopathies
    Experienced in RASopathies

    Duke Cancer Center Brain Tumor Clinic

    20 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    52+ years
    Languages Spoken:
    English, German
    Offers Telehealth

    What we specialize in at The Preston Robert Tisch Brain Tumor Center is compassionate care – we take care of our patients. It’s complete care. The patients don’t have to go out and find a radiologist. We have the radiation oncologist, the chemotherapy, the surgery, the radiology, we have all kinds of nursing people as well as help getting physical therapy and getting in-the-home assistance. Patients also can expect cutting-edge care because we run such a terrific science program here. I really like working with the patients. No question about it. It’s not that I’m doing some trivial procedure six times a day. When someone comes in with a brain tumor, there’s usually some bonding, and instead of running away from that, I really enjoy it. Dr. Friedman is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Glioma, Astrocytoma, Glioblastoma, Awake Craniotomy, and Laminectomy.

    Katherine B. Peters
    Experienced in RASopathies
    Experienced in RASopathies

    Duke Cancer Center

    20 Duke Medicine Cir, 
    Durham, NC 
     (9.2 miles away)
    Experience:
    23+ years
    Languages Spoken:
    English
    Offers Telehealth

    I am a neurologist and cancer doctor who treats brain tumors and researches ways to improve quality of life for brain tumor patients. As a college student, I thought I was going to be a scientist, but fell in love with studying the brain and its inner workings. I enjoy being at Duke, because I work with some of the top clinicians and researchers in the field, and a generous and warm-hearted staff that helps patients and their loved ones through treatment. It is hard to pick one thing I enjoy about my job. I enjoy seeing patients and their loved ones, being at the cutting edge of research and teaching the next generation of doctors. I think it is the chance to do so many different things that makes my job special. Outside of work, I enjoy shopping at farmer’s markets, cooking and exercising. I also collect Swatch watches - I have over 400!. Dr. Peters is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Gliosarcoma, Glioblastoma, Embryonal Tumor with Multilayered Rosettes, and Neuroepithelioma.

    James M. Provenzale
    Experienced in RASopathies
    Experienced in RASopathies

    Duke University Hospital

    2301 Erwin Rd, 
    Durham, NC 
     (9.3 miles away)
    Experience:
    43+ years
    Languages Spoken:
    English
    Offers Telehealth

    James Provenzale is a Neuroradiologist in Durham, North Carolina. Dr. Provenzale has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Pediatric Low-Grade Glioma (pLGG), CACH Syndrome, Meningioma, and Progressive Multifocal Leukoencephalopathy.

    Corinne M. Linardic
    Experienced in RASopathies
    Experienced in RASopathies

    Duke Children's Health Center Hematology/Oncology Clinic

    2301 Erwin Rd, 
    Durham, NC 
     (9.3 miles away)
    Experience:
    31+ years
    Languages Spoken:
    English
    Offers Telehealth

    I care for children and adolescents with blood and cancer disorders. I have a special interest in connective tissue cancers, also known as sarcomas. I also enjoy reading, baking, and studying Mandarin Chinese. I am married and have two children. Dr. Linardic is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Rhabdomyosarcoma, Adult Soft Tissue Sarcoma, Costello Syndrome, and Legius Syndrome.

    David M. Kaylie
    Experienced in RASopathies
    Otolaryngology
    Experienced in RASopathies
    Otolaryngology

    Duke Ambulatory Surgery Center

    2400 Pratt St, 
    Durham, NC 
     (9.5 miles away)
    Experience:
    29+ years
    Languages Spoken:
    English
    Offers Telehealth

    Hearing and balance are among the most fundamental ways people interact with the world. As an ENT doctor, otologist, and neurotologist, I am very fortunate to work in a profession that allows me to help patients having problems with these most basic functions. Every patient I work with presents a unique and challenging problem that needs a creative solution. Whether is it surgery to remove a complex tumor at the base of the skull, placing a cochlear implant to restore hearing to the deaf, or diagnosing a complex balance problem, I am motivated to work with my patients to come up with a custom solution to their personal problem. I measure my success by my patients’ improvement and satisfaction. Dr. Kaylie is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Acoustic Neuroma, Schwannoma, Hearing Loss, Mastoidectomy, and Myringotomy.

    Experienced in RASopathies
    Experienced in RASopathies

    University Of North Carolina At Chapel Hill

    143 W Franklin St, 
    Chapel Hill, NC 
     (0.2 miles away)
    Languages Spoken:
    English

    Marsha Davenport is a Pediatrics provider in Chapel Hill, North Carolina. Dr. Davenport is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Turner Syndrome, Intersex, RASopathies, and Mixed Gonadal Dysgenesis.

    Experienced in RASopathies
    Neonatology | Obstetrics and Gynecology
    Experienced in RASopathies
    Neonatology | Obstetrics and Gynecology

    University Of North Carolina At Chapel Hill

    101 Manning Dr, 
    Chapel Hill, NC 
     (0.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Neeta Vora is a Neonatologist and an Obstetrics and Gynecologist in Chapel Hill, North Carolina. Dr. Vora is rated as an Experienced provider by MediFind in the treatment of RASopathies. Her top areas of expertise are Polyhydramnios, Anencephaly, Micrognathia, Hemolytic Disease of the Newborn, and Thrombectomy. Dr. Vora is currently accepting new patients.

    Experienced in RASopathies
    Plastic Surgery
    Experienced in RASopathies
    Plastic Surgery

    UNC Hospitals Pulmonary Function Lab

    101 Manning Dr, 
    Chapel Hill, NC 
     (0.6 miles away)
    Languages Spoken:
    English

    Adeyemi Ogunleye is a Plastic Surgeon in Chapel Hill, North Carolina. Dr. Ogunleye is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Neurofibromatosis, May Thurner Syndrome, Legius Syndrome, Vulvectomy, and Tissue Biopsy.

    Experienced in RASopathies
    General Surgery
    Experienced in RASopathies
    General Surgery

    University Of North Carolina Hospitals

    101 Manning Dr, 
    Chapel Hill, NC 
     (0.6 miles away)
    Languages Spoken:
    English

    Robert Hanfland is a General Surgeon in Chapel Hill, North Carolina. Dr. Hanfland is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Congenital Coronary Artery Malformation, Atrioventricular Nodal Reentrant Tachycardia (AVNRT), and RASopathies.

    Experienced in RASopathies
    Experienced in RASopathies
    101 Manning Dr, 
    Chapel Hill, NC 
     (0.7 miles away)
    Languages Spoken:
    English

    Arthur Aylsworth is a Pediatrics provider in Chapel Hill, North Carolina. Dr. Aylsworth is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Arthrogryposis Multiplex Congenita, Hypochondroplasia, Micrognathia, and Early Infantile Epileptic Encephalopathy.

    Experienced in RASopathies
    Orthopedics
    Experienced in RASopathies
    Orthopedics

    UNC Health Prosthetics And Orthotics LLC

    102 Mason Farm Rd, 
    Chapel Hill, NC 
     (1.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Robert Esther is an Orthopedics provider in Chapel Hill, North Carolina. Dr. Esther is rated as an Experienced provider by MediFind in the treatment of RASopathies. His top areas of expertise are Bone Tumor, Adult Soft Tissue Sarcoma, Rhabdomyosarcoma, Hip Replacement, and Liver Embolization.

    Showing 1-20 of 26

    Last Updated: 02/22/2026

    What is the definition of RASopathies?

    RASopathies are a group of rare syndromes causes by mutations in the genes that make proteins for the Ras/MAPK cell signaling pathway. This pathway controls cell functions such as cell growth, cell maturation, and cell death. There are several types of RASopathy syndromes, including cardiofaciocutaneous syndrome, Costello syndrome, Legius syndrome, neurofibromatosis type 1, Noonan syndrome, and capillary malformation-arteriovenous malformation syndrome.

    When should I see a RASopathies doctor near Chapel Hill, NC?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a RASopathies doctor near Chapel Hill, NC?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank RASopathies doctors near Chapel Hill, NC?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by RASopathies doctors near Chapel Hill, NC?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a RASopathies doctor near Chapel Hill, NC?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the RASopathies doctor search results page. 

    Why is it important to get a second opinion from a different RASopathies doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a RASopathies doctor near Chapel Hill, NC?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my RASopathies doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my RASopathies doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female RASopathies doctors near Chapel Hill, NC?

    Look for the filter feature on the left side of the RASopathies doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a RASopathies doctor that offers video calls?

    Look for the filter feature on the left-side of the RASopathies doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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